tag:blogger.com,1999:blog-6485729541580426717.post8199154801237310353..comments2024-03-11T00:26:35.303-07:00Comments on The Many Banes of My Existence by Alexis: Bad NewsAlexisARhttp://www.blogger.com/profile/09797016673203467911noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6485729541580426717.post-90027692709386743722010-12-10T21:31:37.575-08:002010-12-10T21:31:37.575-08:00I think the diagnosis hit her pretty hard. I still...I think the diagnosis hit her pretty hard. I still don't know anything about just how advanced the condition is in her case. Apparently her husband has suspected it for six months or so but was finally able to persuade her doctor to look at her and test for it.<br /><br />I would have to assume it can't be too advenced if the doctor didn't suspect it at all, but I could be wrong. She's had pneumonia more than ten times, so there could be some scarring, but her lungs are really well-developed from running, which helps because the lungs have much greater reserves than they would without the heavy cardio workouts. (She said her parents always nagged her about that because they said it was making her too thin, but it ends up that it was a very good thing.)<br /><br />Part of the issue now will be whether or not it is a good idea to have children both from the standpoint of how long she will be around to raise them and considering whether or not she will be healthy enough to sustain a pregnancy without doing irreparable damage to herself. My dad said she really needs to find a specialist near the area where her husband will do his medical residency because it would be better if she didn't start treatment with one facility and then switch in seven months, especially since her parents are wealthy and can afford to pay for her plane tickets until she and pseudo-uncle move this summer. Then once she is thoroughly evaluated, if she decides she wants to go ahead with pregnancy, she should just do it, since it's unlikely that her situation will drastically improve and possible it will get worse.<br /><br />Her parents want her to quit teaching now so she won't be exposed to as much. She doesn't want to quit. It's her decision of course. I think she should quit because her parents can afford to give her part of her inheritance now, and the money she would need to help support herself and pseudo-uncle is a very small amount in terms of how much she will inherit eventually. For that matter, she probably has some sort of salary insurance and could probably be granted medical leave.<br /><br />It's a good thing that she's teaching sixth grade and not kindergarten because sixth graders aren't quite as germy.<br /><br />Matt, how old is the person now who was diagnosed in his forties, and what is his physical condition?AlexisARhttps://www.blogger.com/profile/09797016673203467911noreply@blogger.comtag:blogger.com,1999:blog-6485729541580426717.post-68261774850597326582010-12-09T13:21:58.509-08:002010-12-09T13:21:58.509-08:00I heard of another case like this. That person rea...I heard of another case like this. That person reached their 40s before they were diagnosed. They, too, had very mild symptoms. <br /><br />That salty taste thing is interesting. Hope she can cope well with the diagnosis.Matthttps://www.blogger.com/profile/17774822085901274565noreply@blogger.comtag:blogger.com,1999:blog-6485729541580426717.post-37605263817877084492010-12-08T12:13:12.632-08:002010-12-08T12:13:12.632-08:00Interesting information. Pseudo aunt is dealing wi...Interesting information. Pseudo aunt is dealing with the opposite of constipation. My dad said with little kids and babies that have cystic fibrosis, parents have to pound on their upper torsoes multiple times each day to loosen mucous in their lungs. I did read that CF patients need regular cardiovascular exercise, and Jillian runs middle distances or wind sprints every day. That much is good.AlexisARhttps://www.blogger.com/profile/09797016673203467911noreply@blogger.comtag:blogger.com,1999:blog-6485729541580426717.post-83339953399879727082010-12-08T10:13:02.170-08:002010-12-08T10:13:02.170-08:00Oh yeah… and Dr. Sherry (crazy magician doctor wit...Oh yeah… and Dr. Sherry (crazy magician doctor with the beard) said that they sometimes put the Cystic Fibrosis kids in a “shake machine” to shake them until they have to use the bathroom (GI wise). I certainly hope he was kidding!Beccanoreply@blogger.comtag:blogger.com,1999:blog-6485729541580426717.post-38272546588203542552010-12-08T10:10:33.693-08:002010-12-08T10:10:33.693-08:00Hopefully they can control her symptoms with minim...Hopefully they can control her symptoms with minimal intervention. There are a lot of patients with CF who are seen by motility specialists because of extreme constipation... although ulcerative colitis seems to suggest opposite symptoms. I don't know much about CF other than the info Dr. Boyle shared with me, because he thought I had it.<br /><br />It's pretty impressive that pseudo- uncle diagnosed her. I will be sure to pray for Jillian.Beccanoreply@blogger.com